WWOX EUROPE
WWOX Foundation Europe e.V
The association "WWOX Europe e.V." was founded by parents whose child suffers from WWOX syndrome.
Among other things, the association is intended to serve as a contact point for affected European families and to foster the exchange amongst affected families.
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The aim of the association is:
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Promoting science, research and development related to WWOX syndromes in Europe.
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To promote, maintain and disseminate awareness and knowledge about WWOX syndromes.
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The support of and exchange between affected European families
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Representation of the interests of affected children vis-à-vis research institutions and public authorities.
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Cooperation with domestic and foreign associations sharing a common goal.
The association pursues exclusively and directly charitable purposes according to the notice of the Tax Authority Mainz dated 21 February 2024 (Tax No.: 26/675/17974) and is registered at the Local Court of Mainz/Germany (VR 42350).
Board of Directors
Alexander Maringer
Chairman
Alexander and his wife Anne founded the association to establish a European representative office of the WWOX Foundation. He was elected chairman by the general assembly.
Alexander works as an in-house lawyer in the pharmaceutical industry and thus brings a lot of experience and knowledge regarding medical research, development and clinical trials to the association.
Alexander is the father of Marius, who suffers from WOREE syndrome, and his big sister Regina. The family lives in Mainz/Germany.
Anne Maringer
Deputy Chairwoman
Anne founded the association together with her husband Alexander and acts as deputy chairwoman of WWOX Europe e.V.
Anne works in the IT consulting industry. In addition, she cares for her son Marius, who suffers from WOREE syndrome.