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Participate
You can join us in advancing the current research for a cure to WWOX gene related disorders.
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WWOX PATIENT REGISTRY
A registry that collects caregiver-reported information on patients with WWOX-related disorders based out of the University Of Sydney.
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CLICK HERE TO REGISTER
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JOIN THE CONVERSATION
Come join our Facebook Parent group to stay informed on the latest research and be part of a community of families in the same journey as yours.
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JOIN HERE
02
INVITAE NATURAL HISTORY STUDY
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Allows clinical researchers to see how the disease changes over time
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Enables better endpoint selection to use in clinical trials
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Reduces the time it takes to study new medicines in clinical trials
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Currently open to US families only.
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CLICK HERE TO JOIN
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Questions?
Contact us, we are here to help.
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