Participate

You can join us in advancing the current research for a cure to WWOX gene related disorders.

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WWOX PATIENT REGISTRY

A free registry that collects caregiver-reported information on patients with WWOX-related disorders. The goal is to collect valuable insight to help direct research and standards of care. We have partnered with Sanford Health, a research hospital system in the United States, to host our registry. All patients with a WWOX-related disease are eligible to join. It is open to patients from all countries.

CITIZEN MEDICAL RECORD STUDY

You can help us advance the understanding of our disease by sharing de-identified medical records.

Please join Citizen and participate in our community's efforts to accelerate treatments.

*Currently open to US families only.

Join HERE

JOIN THE CONVERSATION

Come join our Facebook Parent group to stay informed on the latest research and be part of a community of families in the same journey as yours.

Join us here

Participate

You can join us in advancing the current research for a cure to WWOX gene related disorders.

WWOX PATIENT REGISTRY

CITIZEN MEDICAL RECORD STUDY

JOIN THE CONVERSATION

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