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WOREE child

Advancing Treatments
for WOREE & SCAR12

Supporting families. Accelerating research. Building hope.

The WWOX Foundation connects families, clinicians and researchers worldwide to improve care and accelerate treatments for WOREE and SCAR12 syndromes.

Our Mission

Our mission is to promote and fund ongoing medical research dedicated to developing treatments and finding a cure for WWOX related syndromes.

Support Families

We provide a support framework for families with children suffering from WWOX deficiency.

Advance Research

We fund researchers to pursue scientific research related to WWOX.

Build a Global Community

We unite families, clinicians, researchers and advocates worldwide to drive real change.

Find the information and support you need

What is WWOX?
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Learn about the WWOX

gene and the conditions it causes.

Learn more

Newly Diagnosed?
Start Here

Information, guidance and next steps for families.

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Get Started

Join the Patient
Registry

Your data helps drive

research and accelerates

treatments.

Join Today

Research &
Clinical Trials

Explore our research programmes and updates on potential therapies.

Explore

Family Support
Network

Connect with other families and access support resources.

Connect

Research in Progress. Real Hope.

Decades of dedication. A future of possibility

Your Data. Their Future.
Join the WWOX Patient Registry.

The registry is the foundation of our research. By sharing your data, you help researchers understand these conditions and accelerate the path towards treatments.

Every family helps move research forward.

Accelerate Research

More data leads to faster discoveries.

Improve Care

Help shape better care guidelines.

Stronger Community

Connect with families worldwide.

Meet Our Global Teams

Parents holding their child together

WWOX Foundation Australia

Australia

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Parents seated outdoors with their WOREE children

WWOX Foundation of America

United States

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Parents with their WOREE child outdoors

WWOX Foundation Europe

Germany

Read More
Pirate WOREE child

Provide Hope

Help us advance novel therapies for WWOX-related disorders. Our goal is to turn promising research into safe and effective treatments for affected children and families.

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Your generous donation will support ground breaking laboratory research and create a pathway towards a clinical trial.

Stay informed 

Sign up to receive the latest news, research milestones and opportunities to get involved with the WWOX community.

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